Help Alport Syndrome Research

Apply below to get your voice heard, get paid and raise money for charity

  • Phone & Online Interview
  • 75
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We are conducting telephone & online discussions with people living with Alport Syndrome and their Partners / Carers / Loved Ones to learn more about your experiences

Who can participate?

People living with Alport Syndrome and their Partners / Carers / Loved Ones

What is it?

You will be asked to complete a 15 minute online survey and then take part in a 60 minute telephone interview. We are interested in learning from Patients and/or Caregivers of Patients with Alport Syndrome, including their experience with early presentation, diagnosis, and day-to-day management of the condition. It will cover your experiences and current attitudes, drug treatments, your interaction and relationship with healthcare professionals and the support services and information that are available to you. All your details are kept confidential. You will have the option to donate at least 10% of your earnings to your choice of our registered charities (you can donate more if you wish).

What areas does it cover?

United Kingdom

Not eligible for this research?
You can still signup and we'll be in touch as soon as a relevant survey becomes available
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What our users say

About Liberating Research

Liberating Research is a health research community where patients get paid to take surveys and raise money for charity at the same time. Started by a Multiple Sclerosis patient to help patients get their voices heard, you get paid for every survey you complete and agree to donate part of your earnings to charity. So by getting involved you can get paid, raise money for charity and help research all at the same time.

Your Privacy

Our organisation was created by a Multiple Sclerosis patient so we understand how important your personal data is. Everything we share is completely anonymised and unidentifiable, and you choose what information to enter and what surveys to complete. We will never pass on your personal details to any third parties without your consent and you can opt out at any point. We abide by all applicable laws protecting personal data, as well as the market research code of conduct from the BHBIA (British Healthcare Business Intelligence Association) of which we are members.

Are you a charity or support group?

If you think your patients might be interested in taking part in this research or you want our users to raise money for you please get in touch and we'll send you some materials to give out

Get in touch

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Comments, questions, queries or suggestions
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Get in Touch

Unit 7/8 (1st Floor), Warwick Works, Downs Rd, London E5 8QJ, UK

+44 (0)207 249 4461