Help Progressive Supranuclear Palsy Research

Apply below to get your voice heard, get paid and raise money for charity

  • Phone Interview
  • 105
    minutes
  • Earn
  • Everyone donates
    at least
    10%
    to charity
  • Apply now

We are conducting telephone interviews and online diaries with people living with PSP and their partners / carers / loved ones on behalf of UCB to learn more about your experiences

Who can participate?

People living with PSP and/or their partners / carers / loved ones

What is it?

The study will consist of a 60 minute combined interview with the carer and patient (paying $58 / £58 each). We understand that the patient may not be well enough to take part, in which case the carer can participate on their own. After the interview there will be a 45 min electronic diary to be completed via an app by the carer (paying $33 / £33).

The aim of the study is to get a better understanding of the burden of Progressive Supranuclear Palsy (PSP) and how it affects patients and loved ones alike. Your feedback will help us to gain a better understanding, so that potential support measures can be created to help PSP patients in the future. Taking this opportunity to have your voice heard would greatly help us further our research, and your participation would be hugely appreciated. All your details are kept confidential. At least 10% of your earnings will be donated to your choice of our registered charities (you can donate more if you wish).

What will you earn?

$91 - 149 / £91 - 149
(or equivalent in your local currency)

What areas does it cover?

United States, United Kingdom, Germany, France, Italy, Spain

Not eligible for this research?
You can still signup and we'll be in touch as soon as a relevant survey becomes available
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About Liberating Research

Liberating Research is a health research community where patients get paid to take surveys and raise money for charity at the same time. Started by a Multiple Sclerosis patient to help patients get their voices heard, you get paid for every survey you complete and agree to donate part of your earnings to charity. So by getting involved you can get paid, raise money for charity and help research all at the same time.


Your Privacy

Our organisation was created by a Multiple Sclerosis patient so we understand how important your personal data is. Everything we share is completely anonymised and unidentifiable, and you choose what information to enter and what surveys to complete. We will never pass on your personal details to any third parties without your consent and you can opt out at any point. We abide by all applicable laws protecting personal data, as well as the market research code of conduct from the BHBIA (British Healthcare Business Intelligence Association) of which we are members.

Are you a charity or support group?

If you think your patients might be interested in taking part in this research or you want our users to raise money for you please get in touch and we'll send you some materials to give out

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Phone
+44 (0)207 249 4461