Help Research into Inclusion Body Myositis & Amyotrophic Lateral Sclerosis (ALS)

Apply below to get your voice heard, get paid and raise money for charity

  • Phone Interview
  • 2
  • Earn
  • Everyone donates
    at least
    to charity
  • Apply now

We are conducting phone interviews & written diaries with people living with Inclusion Body Myositis (IBM) or Amyotrophic Lateral Sclerosis (ALS) and their partners / carers / loved ones to learn more about your experiences

Who can participate?

People living with ALS or IBM and their partners / carers / loved ones

What is it?

A week long written diary (60 minutes over the week) plus a 60 minute telephone interview. The discussions are designed to understand experiences, emotions, social and personal dimensions of the IBM/ALS patient/caregiver journey, from different perspectives. It aims to identify key milestones in the IBM/ALS patient/caregiver journey and understand what areas the IBM/ALS patient/caregiver sphere can be better supported All your details are kept confidential. At least 10% of your earnings will be donated to your choice of our registered charities (you can donate more if you wish).

What will you earn?

$210 / £160 / €180
(or equivalent in your local currency)

What areas does it cover?

United States, United Kingdom, Germany, France

Not eligible for this research?
You can still signup and we'll be in touch as soon as a relevant survey becomes available
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What our users say

About Liberating Research

Liberating Research is a health research community where patients get paid to take surveys and raise money for charity at the same time. Started by a Multiple Sclerosis patient to help patients get their voices heard, you get paid for every survey you complete and agree to donate part of your earnings to charity. So by getting involved you can get paid, raise money for charity and help research all at the same time.

Your Privacy

Our organisation was created by a Multiple Sclerosis patient so we understand how important your personal data is. Everything we share is completely anonymised and unidentifiable, and you choose what information to enter and what surveys to complete. We will never pass on your personal details to any third parties without your consent and you can opt out at any point. We abide by all applicable laws protecting personal data, as well as the market research code of conduct from the BHBIA (British Healthcare Business Intelligence Association) of which we are members.

Are you a charity or support group?

If you think your patients might be interested in taking part in this research or you want our users to raise money for you please get in touch and we'll send you some materials to give out

Get in touch

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Comments, questions, queries or suggestions
- we would love to hear from you


Get in Touch

Unit 7/8 (1st Floor), Warwick Works, Downs Rd, London E5 8QJ, UK

+44 (0)207 249 4461